DIALYSIS VLOG

The week that was.........

Certainly one to remember!

This picture of Brett is day 1 of dialysis 1st May 2012.

It has been a big week.

One we new was coming  but still in denial until it actually happened.

But it is here and it is our now and this is our life.

I was inspired to do this short video log after reading this post that Megan

put up on her blog a couple of weeks ago.

Not that a couple of weeks ago did we ever think we were so close to Brett starting dialysis.

Considering we have been on this knifes edge with this for about 2 years,

wondering if we would get through the next holiday, joyful that the next holiday was here

and we would be able to do it,

and all the stress and tension that goes with the unknown, bad health, a bit of depression, 

even so, we are still in shock that this has started now and this is what we have to deal with.

No amount of education and support from the hospital can ever really prepare you,

although in saying that, every single nurse,

counsellor and specialist has been fantastic and I

can not speak highly enough of everyone we have been in contact with at Royal Perth Hospital.

On the other hand, now that it has started we are glad, it is here,

it is a part of our life and such is life that you keep putting one foot in front of the other

and you just do it and deal with it!

This video log is day 3 of dialysis 5th May 2012, a much happier Brett.

So just in case this might be helpful to someone else in a similar situation, we did these short

video logs for anyone interested in having a listen.

Thanks for being so inspirational Megan

If anyone else is going through this and wants to chat please do not hesitate to leave a comment we would love to hear from you.

THE TIME HAS COME!

We have been waiting for this moment for such a long time.

Brett has been on the border line for what seems like years 

but in reality has probably only been around 18 months although the road to this point 

has been about 10 years in the making.

It's been a tough road, hilly, full of a lot of ups and downs 

and then it seems to plateau which as lead us into a false sense of security 

only to have some speed humps thrown in every now and then 

to keep as on our toes.

Today is the day.

Day 1 of dialysis.

It's here.

I am glad!

 

Brett has been miserable.

It's been tough.

We have enough to deal with, our road together this last 5 years has been rocky!

Trying to bring together our children from previous marriages, 

dealing with hormonal teenagers which seems to be never ending 

having 3 boys from 19 to 12 years and Brett's failing kidneys 

and dialysis looming it's ugly head.

But, here we are, still together and now facing another new chapter, another new battle.

Bring it on I say!

I want Brett to feel better.

I want him to have more energy.

And

WE CAN DO THIS!

Together

As a family

As one!

I learnt something very interesting yesturday.

I think I was trying to believe dialysis was going to be a miracle cure.

But dialysis only gives you an extra 10 - 15% kidney function.

Considering Brett has less than 5% kidney function, it doesn't do a lot.

But, the doctor thinks he will feel a LOT, LOT better.

You don't tend to realise how bad you sometimes feel, until you start to feel better.

And that is something to look forward too.

So

Day 1 of dialysis

Tuesday 1st May 2012

Let's do it!